Wednesday, July 29, 2009

Looking for Clinical Trials?

When each member of my family was first diagnosed with diabetes, one of the first things I searched for on the web was for cutting edge therapies that may help reverse or delay the progression of the diabetes. Until now there was no one place to quickly and easily search for treatments undergoing human clinical trials. And if you did find a study, more often than not, it would be for males if you were a female or for geriatrics if you were searching for pediatrics. I'm happy to announce that JDRF has put something together that can help you find and understand research studies that may fit and match a SPECIFIC profile.

You can check it out online at www.trials.jdrf.org.

Here's what they say about it in their official announcement:
The on-line Clinical Trials Connection service is an online tool that provides information about and access to clinical trials – both JDRF-funded and others. Once you’ve registered on the site you can enter the type of trial you are interested in, how long you’ve had diabetes, and how far you’d be willing to travel, and the site will let you know about studies that match those characteristics. With Clinical Trials Connection, you can compare one trial with another, and get updates on new trials that might match your interest. In addition, it will provide you contact information for each trial sponsor and investigator.

Tuesday, July 28, 2009

Packing for Camp

We love the Clara Barton Camp that Cassie attends every summer. The staff is knowledgeable not only about her diabetes, but with celiac disease as well. This year she'll learn how to sail. As she turns into a young adult I find this quite allegorical.

I think the best part about camp though are the friends made there. One of the neatest things is the opportunity to be in a crowd of kids your own age where diabetes isn't a thing that sets you apart. She can't wait to see her friend Emily.

I'll miss her over the next couple weeks. And though the folks there are awesome pros, a parent never stops worrying. We trust them, and we trust her. This is going to be another great adventure for her!

Untethered

This summer we're experimenting going pumpless. No bulky pump. No tangly line. No insertion needles that seem to pop out just at the absolute worst time. Like when you're at the pool, at the beach or just out running around. It seems like the right thing to do for summer activity and for a teenage girl that's suddenly quite fashion conscious.

As freeing as this is there are drawbacks.

We have to do more blood tests throughout the day, go through several shots per day, and learn how Cassie's body reacts to the long acting insulin, Lantus.

There were some unexpected upsides too. There's not a whole lot more diabetes supplies to carry around (now that Novapens exist). And Cassie has been very responsible with administering her own dosing and injections.

I have to say that for summer living, so far the advantages have really outweighed the disadvantages. All it takes is keeping the diligence to blood sugar control constant during the switch.