Wednesday, December 21, 2011

Sweet 16


Early yesterday morning, after blowing out 16 candles on her birthday cake the night before, Cassie went through one of the most harrowing, stress-filled teen experiences- the dreaded road test at the DMV.

Three point turns and turn signals aren't my largest concerns. She's a very competent and safe driver. The daddybetic in me was more concerned about her driving with passable blood sugars. Hypoglycemia at 55 miles per hour is not a worry for parents of "normal" teens. If we could figure out how to hook up a blood glucose meter to the ignition, I would do it in a heartbeat. But her mom and I will just need to trust that she'll do the right thing every time she gets behind the wheel.

Driving off, Cassie beamed. Gauging her wide, wide smile I could relate to the emotions she had. I distinctly remember the feeling of driving unaccompanied for the first time at 16. It was a sense of liberation and elation I had never experienced before. I felt free. I felt light. The world seemed open to entirely new possibilities. It's probably the same feeling we would all have the day diabetes is cured. I hope Cassie gets this sweet feeling again soon.

Friday, December 09, 2011

Twitter Update

I've changed my @rpmax twitter handle to @daddybetes. Makes sense, no?

When I opened up a twitter account, I figured I would tweet like most people. I imagined passing along juicy news about Ashton and Demi, giving the world updates on my cat's hairballs and letting everyone know if I'm at a Starbucks near you.

Well, that's not what happened.

I don't have a cat. I rarely go to Starbucks (because I prefer indy coffee shops). And I don't really care about Ashton and Demi's private business.

What I DO care about is diabetes. News about promising research. Roadblocks from Washington. Stories of heroes in the diabetes online community (DOC). So what happened is that diabetes took over my twitter feed just as it had taken over my daughter's pancreas.

So I'm not fighting it. And it made sense to change the twitter account to coincide with my blog name. Thanks for following me.

Wednesday, December 07, 2011

The FDA is Listening

Our entire family has been collectively holding our breath, awaiting for action from the U.S. Food and Drug Administration (FDA). Last week, the FDA issued guidance for scientists and device manufacturers seeking approval for artificial pancreas technologies. It was a monumental shift in governmental policy that helps to flatten the regulatory hurdles that could hamper the delivery of groundbreaking treatments for my wife, daughter and anyone else suffering from Type 1 diabetes.

This outcome didn't happen without ALOT of regular, patient advocates rallying around the issue. Over 100,000 signed the artificial pancreas petition to urge the FDA and our Congressional representatives to ACT.

Jeffrey Brewer, whose son Sean has T1, is another"daddybetic." Coincidentally, Jeffrey also serves as CEO of JDRF received the news by saying that "the FDA has been responsive and listened to the recommendations of leading clinicians and researchers in the type 1 diabetes field."

Kudos to the FDA for listening and taking the time and resources to understand the hardships of the diabetes community. And equally big kudos to those of us who made our voices heard.